40% did not receive all of the information that they needed/wanted |
24% were not told about other products and they would like to have been |
19% were not told about how to fix issues that arose, such as leakages, skin issues |
16% were not supervised changing their pouch at the hospital; many said that they did not change the pouch themselves before leaving to go home |
12% did not receive any information on support groups (online or face-to-face) |
11% did not receive any type of emotional exchange from their provider |
10% did not see an ostomy-specific nurse at all |
Other areas of inadequacy were that the nurse was rude or had an attitude, made ostomates feel dismissed, and were left with questions unanswered |