P.E.W.P. Study Phase One Results

PHASE ONE HAD 420 PEOPLE WITH AN OSTOMY PARTICIPATE
77% Female23% Male
88% White12% Non-White
17% H.S. Graduate or below39% Some college
27% Bachelor’s degree17% Graduate degree or higher
11% Reside outside of the U.S. The majority live in the United Kingdom and Canada
PHASE ONE RESULTS:
We found that almost half of the sample (49%) felt that they did not receive adequate information from their medical provider while at the hospital. The main areas of inadequacy reported were:
40% did not receive all of the information that they needed/wanted
24% were not told about other products and they would like to have been
19% were not told about how to fix issues that arose, such as leakages, skin issues
16% were not supervised changing their pouch at the hospital; many said that they did not change the pouch themselves before leaving to go home
12% did not receive any information on support groups (online or face-to-face)
11% did not receive any type of emotional exchange from their provider
10% did not see an ostomy-specific nurse at all
Other areas of inadequacy were that the nurse was rude or had an attitude, made
ostomates feel dismissed, and were left with questions unanswered